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Ethical Issues of Human Genetic Databases

A Challenge to Classical Health Research Ethics?
Langbeschreibung
This book compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, policy-makers and researchers in the field of medical ethics.
Inhaltsverzeichnis
Contents: Foreword, Arthur L. Caplan; Introduction; Selected existing genetic databases: distinctive features, ethical problems and the public debate; The ethical debate: principles, values and interests - the ethical foundations of guidelines; Selected issues of consensus and of controversy; Ethical issues human genetic databases and the future; References; Index.
Professor Bernice Elger teaches health law and bioethics at the Institute of Legal Medicine, University of Geneva. She is a member of an international collaboration project on ethical issues of human genetic databases, with involvement of the Department of Ethics, Trade, Human Rights and Health Law at the World Health Organization (WHO) headquarters in Geneva, a member of the subcommission who wrote the Swiss guidelines on biobanks, a member of the ethics board of @neurist, an international data and sample bank project financed by the European Commission, and a member of a Swiss working group on informed consent (Swiss Biobank).
ISBN-13:
9781317141457
Veröffentl:
2016
Seiten:
332
Autor:
Bernice Elger
eBook Typ:
EPUB
eBook Format:
EPUB
Kopierschutz:
2 - DRM Adobe
Sprache:
Englisch

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